RESUMO
The clinical presentation of pervasive refusal syndrome is marked by a refusal to eat, walk, talk, firm resistance and an aggressive refusal to accept help and care. The management of patients with this syndrome is physically and emotionally draining for caregivers. The quality of the relationship can be quickly affected as it is so unusual and singular. Training, communication and support from the team are essential to be able to continue to provide compassionate care.
Assuntos
Recusa do Paciente ao Tratamento , Humanos , SíndromeRESUMO
Pervasive refusal syndrome is a rare clinical disorder affecting children and teenagers. It is characterised by social withdrawal and opposition which significantly affects how patients function and their treatment. The twenty or so cases reported in literature help to specify the main diagnostic and therapeutic elements. Early recognition of pervasive refusal syndrome is essential in order to treat these young patients as effectively as possible.
Assuntos
Transtornos Globais do Desenvolvimento Infantil/diagnóstico , Transtornos Globais do Desenvolvimento Infantil/terapia , Adolescente , Criança , Diagnóstico Precoce , HumanosRESUMO
The transition from child to adult psychiatry is a fundamental stage in an individual's development and in the care pathway of teenagers with mental health problems. The organisation of adult care is very different from that provided to children. There is often a lack of support provided to patients as they make the transition between these two systems, despite it being essential. Local initiatives must be developed to rethink this particularly vulnerable period.